The EHDEN Portal includes a Data Partner Catalogue and Feasibility Dashboards that support data discoverability. Such tools are essential for addressing the challenge that everyone working with observational health data faces: having ‘a data ocean but a desert for analysis’.

Currently, 67 EHDEN Data Partners are included in the Catalogue. These partners either provide metadata on European observational health data in the OMOP format or convert their source data to the OMOP common data model (CDM). All Data Partners who receive IMI EHDEN funding will add their metadata to the Catalogue, resulting in further network growth in the coming months and years.

EHDENPortal1 — EHDEN Portal's Welcome page. The EHDEN Portal provides an entry point to the growing list of tools in their ecosystem.

While the Catalogue contains metadata, the Feasibility Dashboard gives access to the database and allows users to explore the data based on characteristics such as geographical spread, demographics, data domains, as well as information about data provenance, observation periods, hospital visits, and condition occurrence.

EHDENPortal1 — The many capabilities of the EHDEN Portal

This Portal demonstrates how EHDEN's mission is becoming a reality: to provide a new paradigm for the discovery and analysis of observational health data in Europe by building a large-scale, federated network of data sources standardized to a common data model (OMOP). The Portal supports collaborative research that will translate into better insights into disease progression and treatment results. This will eventually enable improved medical decision-making and better treatments for patients based on real-world evidence.

About EHDEN

EHDEN (European Health Data and Evidence Network) is a federated data network designed to address the challenges researchers face in the generation of real-world evidence (RWE) from real-world data (RWD). EHDEN aims to maximize the transformational potential of RWD and RWE at scale to facilitate standardized and faster observational research that improves insights into disease, treatment, and outcomes for patients across Europe.

Read more about EHDEN’s presence at the OHDSI Europe Symposium 2022, including reflections on the Portal’s launch by esteemed community members, here.

Funding Statement

The European Health Data & Evidence Network (EHDEN) has received funding from the Innovative Medicines Initiative 2 Joint Undertaking (JU) under grant agreement No 806968. The JU receives support from the European Union’s Horizon 2020 research and innovation program and the European Federation of Pharmaceutical Industries and Associations (EFPIA).

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