The Hyve has started a new activity: webinars. Our first episode was on health data research infrastructures.
This topic has been attracting a lot of attention recently. For instance, in Germany or Switzerland the government decided to invest in a country-wide network of research and health data. The information can be accessed by scientists, medical doctors, and the patients themselves, who provide the data in the first place.
Establishing a secure, safe and easy-to-use environment with powerful analytics capabilities is not a simple task.
Building such a system requires decisions on numerous aspects, including basic IT principles, user management, security, patient data de-identification.
Therefore, initiatives around health data research infrastructures often involve multiple vendors with expert knowledge of a particular process or specific applications.
Furthermore, consultancy and business analysis efforts help both the initiator (a hospital or research institute) and the vendor (IT-companies such as The Hyve). These efforts make it easier for the initiator to identify and define its needs and for the vendor to understand the requirements of the initiator’s business case and to find an optimal solution.
The Hyve’s founder and CEO, Kees van Bochove, is an experienced consultant and business analyst. He has been involved in various national health data initiatives as an IT supplier, for example, as part of the CTMM Translational Research IT (TraIT) project in which The Hyve provides services for the translational data warehouse tranSMART.
During the webinar Kees discusses which aspects a consultant or business analyst needs to get a clear picture of:
- Business requirements for setting up a successful health data research infrastructure in the current context of data privacy and protection
- The concept of a kind of “app store“ and The Hyve’s experience with an “app store for health data research” type of set up in CTMM TraIT
- Basic components of a health data research infrastructure
- Implementing FAIR principles in a national health data environment
- The benefits of open source solutions for health data research infrastructures
The Hyve welcomes any feedback on the webinar. If there is anything you would like to share with us, please leave a reply below or a comment on/with the video.